Palacio de Congresos
Recinto ferial Luis Adaro-FIDMA
Paseo Dr. Fleming, 481, 33203 Gijón
SCIENTIFIC COMMITTEE
Ana María Aranda Iriarte
Guillermo de la Cueva Méndez
Pilar Cagiao Vila
Juan Carlos Rial Basalo
Belén Pimental de Francisco
Estrella Fernández Alba
Alejandra Sánchez Yánquez
FRIDAY, OCTOBER 10TH, 2025
10.00 - 13.00
DISCUSSION TABLES.
Clinical management.
Surgery.
Research and new advances.
15.00 - 16.00
REGISTRATIONS
15.45 - 16.00
WELCOME AND PRESENTATION OF THE CONFERENCE.
18.00
MEETING OF THE SCIENTIFIC COMMITTEE OF THE ALPE FOUNDATION.
WORKSHOPS
16.00 - 19.00
SPORTS FOR EVERYONE. PRACTICE OF DIFFERENT SPORTS DISCIPLINES.
Cosa Nuesa Asociación
16.00 - 17.00
RESPIRATORY PHYSIOTHERAPY WORKSHOP FOR 0-6 YEARS.
16.00 - 17.00
POSTURAL EDUCATION IN EVERYDAY LIFE. PHYSIOTHERAPY FOR ADULTS.
Adela Santullano
17.00 - 18.00
SPEECH THERAPY IN THE EDUCATIONAL STAGE.
17.00 - 18.00
MEETING WITH OUR YOUTH.
If You're Between 13 And 17 Years Old… ¡Join Us! We Want To Hear From You.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 0 to 6.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 6 to 12
Marian Losada Ruiz
16.00 - 19.00
MEDICAL EVALUATIONS BY SPECIALISTS.SATURDAY, OCTOBER 11TH 2025
8.00 - 9.00 REGISTRATIONS |
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9.00 OPENING Don Adrián Barbón, Presidente del Principado de Asturias. Por confirmar, Ministerio de Derechos Sociales, Consumo Y agenda. Por confirmar, Ayuntamiento de Gijón. Representante de la Fundación ALPE Acondroplasia. |
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9.45 - 10.15 CONTRIBUTION OF PERSONS WITH DISABILITIES TO THE DISCOURSE AND PRACTICE OF HUMAN RIGHTS Presentation: Felipe Orviz Luis Cayo, Presidente del CERMI |
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PRESENTATIONS |
WORKSHOPS |
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10.25 - 11.10 Presentation / Moderator: Mariana del Pino ADVANCES AND ACTIONS TO ADDRESS NEW CHALLENGES: "THE LIFESPAN IMPACT OF ACHONDROPLASIA" "REVIEW OF APPROVED AND DEVELOPING THERAPIES" "UPDATE ON SKELETAL DYSPLASIAS" Hoover- Fong |
MULTISPORT All day long. Asociación Cosa Nuesa. 10.15 - 11.00 WE COMMUNICATE WITH THE BODY. 1-100 years Paula Páramo 10.15 - 11.00 PERCUSSION MUSIC FOR EVERYONE. Jesús Contreras Gila 10.15 - 11.00 SEXUALITY, WE SPEAK CLEARLY. Ana Isabel Fernández Franco + 16 years |
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11.10 - 11.25 COFFEE BREAK |
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11.30 - 12.30 ROUND TABLE. NEUROSURGERY, FREQUENTLY ASKED QUESTIONS. Presentation: Jeffrey W.Campbell Juan Carlos Rial Basalo Moderator: Virginia Fano 11.00 - 13.00 Anfiteatro INTERNATIONAL SUMMIT OF PATIENT ORGANIZATIONS. "Reality Analysis / New Paradigms of Skeletal Dysplasias / Common Challenges / New Steps" Representatives from 25 countries*
12.35 - 12.55 NEW HORIZONS IN RESEARCH ON SKELETAL DYSPLASIAS. Moderator: Morris Kaiserman 13.00 - 14.00 ROUND TABLE. ENDOCRINOLOGY: MONITORING OF PATIENTS WITH AND WITHOUT TREATMENT PHARMACOLOGICAL Presentation: Virginia Fano Isolina Riaño Galán Isabel Leiva Moderator: Virginia Fano |
11.10 - 12.00 THE PATIENT'S VOICE: SINGING TOGETHER REMINDS US THAT WE ARE NOT ALONE. ALPE CHOIR For young people and adults 11.10 - 11.40 WE TALK ABOUT ADAPTED SPORTS AND ITS IMPORTANCE. Olympic Relay 11.10 - 12.00 ATHLETICS Aquila Athletics Club 6 a 18 years 12.15 NUTRITION EDUCATION AS PREVENTION. Laura Garde + 16 years 12.45 - 13.45 DRESS YOUR ESSENCE: FASHION AND STYLING. Elena Pereda Veronica Alba Sánchez 12.45 - 13.45 REFLEXOLOGY FOR ADULTS. Carmen Paja |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35 - 15.55 LUNCH BREAK |
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16.00 - 17.00 LIMB LENGTHENING, "SURGERY AND REHABILITATION" Presentation: I. Ginebreda Kathering Miller Eduardo Estefano Ricki Carrol Mª José Sosa Sandoval Moderator: Susana Noval 16.00 - 18.00 Amphitheater MEETING WITH FAMILIES AND PROFESSIONALS PRIMORDIAL DWARFISM. Andrew Jackson Ricardo A.Hanel
17.05 - 18.00 FREQUENT SURGERIES IN ADEE. Borja Delgado Juan Miguel López Palomo Presentation and Moderator: Josep María de Bergoa |
16.00 - 17.00 THE ROLE OF THE PHYSIOTHERAPIST IN HOLISTIC DEVELOPMENT: WE ALL PLAY, WE ALL PROGRESS. Cristina Caño 0-8 years 16.00 - 17.00 PAINTING: SELF-PORTRAIT, WE DRAW OURSELVES (EXHIBITION OF WORKS) Raquel Canellada 1 - 100 years 16.00 - 18.00 Amphitheater MEETING OF FAMILIES AND PROFESSIONALS ON THE APPROACH TO PRIMORDIAL DWARFISM. 16.00 - 16.30 WE KNOW PERSONAL EXPERIENCE... Catalina Sagastizabal 16.30 - 18.30 ADAPTED SWIMMING. Spanish Swimming Federation. Facilities of the Royal Covadonga Culture Group. It is necessary to know how to swim. 8 - 16 years 18.00 - 19.00 NUTRITION IN CHILDHOOD. Laura Garde 18.00 - 19.00 HOW TO FACE MY FEARS, MOTHERS AND FATHERS OF CHILDREN AGES 12 TO 18. |
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22.00 hrs CONCERT-DANCE, "25 Years EMBRACING THE FUTURE" Group Los Testigos Acapulco Room, Gijón Casino |
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PRESENTATIONS |
WORKSHOPS |
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10.00 - 11.00 MULTIDISCIPLINARY APPROACH TO SKELETAL DYSPLASIAS. Presentation: William Mackenzie Isabel Leiva Jorge Mariscal Jesús Gonzalo Rato Mary Ellen Núria Madureira Ricki Carrol Moderator: Belén Ojeda 11.05 - 11.35 GENETICS, A GUIDE THROUGHOUT LIFE. Presentation: Karen Heath Valerie Cornier Daire Carlos Bacino Moderator: Karen Heath
11.00 - 13.00 Anfiteatro AMPHITHEATER EUROPEAN SKELETAL DYSPLASIA ALLIANCE. MEETING WITH REPRESENTATIVES OF THE DISABILITY COMMITTEE OF THE CONGRESS OF DEPUTIES.
11.45 - 12.30 VOXZOGO, "PATIENTS ASK, DOCTORS ANSWER" Presentation: Genevieve Baujat Julie Hover-Fong Carlos Bacino Isabel Leiva Moderator: Belén Pimentel 12.40 - 13.40 "WELCOME TO THE ADULT WORLD" Our adults speak |
MULTISPORT All day long. Asociación Cosa Nuesa.
10.00 - 11.00 TALKING ABOUT US. Cristina Villar Álvaro Illobre 11.00 - 12.00 REHABILITATION OF ASDD. UPPER AND LOWER LIMBS. Karen Turner11.45 - 12.30 POST-SURGICAL CARE. Ma.José Sosa Sandoval Raquel Palacios Venero Colleen Ditro 11.45 - 12.30 GRANDPARENTS,"SELFLESS LOVE" Carmen Alonso |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35-15.55 LUNCH BREAK |
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16.00 - 17.00 PHARMACEUTICALS, UPDATES AND NEW TREATMENTS. Biomarin TYRA Presentation and Moderator: Guillermo de la Cueva 17.05 - 17.45 EQUAL OPPORTUNITIES IN SCHOOL. Carmen Alonso Mar Garriga Merche Marian Losada Ruiz Moderator: Susana Noval 18.00 - 18.55 "WE LEARN FROM YOUNG PEOPLE" |
16.00 - 17.00 MINDFULNESS FOR EVERYONE. + 18 years Fidel Páramo 16.00 - 16.30 SPORT AS A TOOL FOR LIFE. Álvaro Jiménez Sergi Párraga Álvaro Illobre 16.30 - 18.30 BADMINTON Facilities of the Royal Covadonga Culture Group. 7 a 20 years 17.00 - 18.00 REFLEXOLOGY FOR BABIES. Carmen Paja |
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19.00 BIOMARIN SCHOLARSHIP AWARD Submit the best selfie Category: 6-9 years 10-12 years 12-16 years 16- 19 years + 20 years |
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20.00 CLOSING Institutional representatives ALPE Representatives |
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21.00 ESPICHA Llagar Bernueces |
A COFFEE WITH...
A COFFEE WITH... DR. KLANE WHITE. / "We talk about the back at ADEE"
A COFFEE WITH... TYRA. / Pharmaceutical.
A COFFEE WITH... QED. / Pharmaceutical.
A COFFEE WITH... DR. GUILLERMO IBASETA. / Maxillofacial Expert at ADEE.
A COFFEE WITH… DR. MILLER. / Paley Institute.
A COFFEE WITH… DR. CAMPBELL. / Neurosurgeon.
A COFFEE WITH… DRA. MARY THEROUX. / Anesthesia Expert.
A COFFEE WITH… DR. RAVI SAVARIRAYAN. / Expert in clinical studies.
A COFFEE WITH… DR. LEIVA. / Elongation Expert.
A COFFEE WITH… DR. LOZANO. / Expert in Otorhinolaryngology.
A COFFEE WITH… DR. PALOMO. / Traumatologist expert in dysplasias.
*REPRESENTATIVES FROM 25 COUNTRIES
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