Palacio de Congresos
Recinto ferial Luis Adaro-FIDMA
Paseo Dr. Fleming, 481, 33203 Gijón
SCIENTIFIC COMMITTEE
Ana María Aranda Iriarte
Guillermo de la Cueva Méndez
Pilar Cagiao Vila
Juan Carlos Rial Basalo
Belén Pimental de Francisco
Estrella Fernández Alba
Alejandra Sánchez Yánquez
FRIDAY, OCTOBER 10TH, 2025
10.00 - 13.00
DISCUSSION TABLES.
Clinical management.
Surgery.
Research and new advances.
Private sessions for health-related specialists.
15.00 - 16.00
REGISTRATIONS
15.45 - 16.00
WELCOME AND PRESENTATION OF THE CONFERENCE.
18.00
MEETING OF THE SCIENTIFIC COMMITTEE OF THE ALPE FOUNDATION. (PRIVATE)
WORKSHOPS
16.00 - 19.00
SPORTS FOR EVERYONE. PRACTICE OF DIFFERENT SPORTS DISCIPLINES.
Cosa Nuesa Asociación
16.00 - 17.00
RESPIRATORY PHYSIOTHERAPY WORKSHOP FOR 0-6 YEARS.
16.00 - 17.00
POSTURAL EDUCATION IN EVERYDAY LIFE. PHYSIOTHERAPY FOR ADULTS.
Adela Santullano
17.00 - 18.00
SPEECH THERAPY IN THE EDUCATIONAL STAGE.
17.00 - 18.00
MEETING WITH OUR YOUTH.
If You're Between 13 And 17 Years Old… ¡Join Us! We Want To Hear From You.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 0 to 6.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 6 to 12
Carmen Ovies
16.00 - 19.00
MEDICAL EVALUATIONS BY SPECIALISTS.SATURDAY, OCTOBER 11TH 2025
8.00 - 9.00 REGISTRATIONS |
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9.00 OPENING Don Adrián Barbón, Presidente del Principado de Asturias. Por confirmar, Ministerio de Derechos Sociales, Consumo Y agenda. Dña. Carmen Moriyón Entrialgo, Alcaldesa del Ayuntamiento de Gijón. Representante de la Fundación ALPE Acondroplasia. |
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9.45 - 10.15 CONTRIBUTION OF PERSONS WITH DISABILITIES TO THE DISCOURSE AND PRACTICE OF HUMAN RIGHTS Presentation: Felipe Orviz Luis Cayo Pérez, Presidente del CERMI |
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PRESENTATIONS |
WORKSHOPS |
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10.25 - 11.10 Presentation / Moderator: Virginia Fano ADVANCES AND ACTIONS TO ADDRESS NEW CHALLENGES: "THE LIFESPAN IMPACT OF ACHONDROPLASIA" "REVIEW OF APPROVED AND DEVELOPING THERAPIES" "UPDATE ON SKELETAL DYSPLASIAS" |
MULTISPORT All day long. Asociación Cosa Nuesa. 10.15 - 11.00 PERCUSSION MUSIC FOR EVERYONE. Jesús Contreras Gila 10.15 - 11.00 SEXUALITY, WE SPEAK CLEARLY. + 16 years |
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11.10 - 11.25 COFFEE BREAK |
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11.30 - 12.30 ROUND TABLE. NEUROSURGERY, FREQUENTLY ASKED QUESTIONS. Presentation: José Hinojosa Mena Moderator: Virginia Fano 11.00 - 13.00 Anfiteatro WORKING GROUPS: DECLARATION OF PRINCIPLES IN DEFENSE OF THE HUMAN RIGHTS OF PEOPLE WITH ADEE. INTERNATIONAL SUMMIT OF PATIENT ORGANIZATIONS. Moderator: Rafael de Asís (Expert in human rights and disability.) Representatives from 25 countries*
12.35 - 12.55 NEW HORIZONS IN RESEARCH ON SKELETAL DYSPLASIAS. Moderator: Morris Kaiserman 13.00 - 13.10 HOW PARENTS RECEIVE THE FIRST NEWS. Estrella Fernández (Psychologist) 13.10 - 14.00 ROUND TABLE. PEDIATRICS: MONITORING PATIENTS WITH AND WITHOUT PHARMACOLOGICAL TREATMENT. Presentation: Virginia Fano Moderator: Virginia Fano |
11.10 - 12.00 THE PATIENT'S VOICE: SINGING TOGETHER REMINDS US THAT WE ARE NOT ALONE. ALPE CHOIR For young people and adults 11.10 - 11.40 WE TALK ABOUT ADAPTED SPORTS AND ITS IMPORTANCE. Olympic Relay 11.10 - 12.00 ATHLETICS 6 a 18 years 12.15 NUTRITION EDUCATION AS PREVENTION. + 16 years 12.45 - 13.45 DRESS YOUR ESSENCE: FASHION AND STYLING. Elena Pereda Veronica Alba Sánchez 12.45 - 13.45 REFLEXOLOGY FOR ADULTS. Carmen Paja |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35 - 15.55 LUNCH BREAK |
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16.00 - 17.00 LIMB LENGTHENING, "SURGERY AND REHABILITATION" Presentation: I. Ginebreda Kathering Miller Moderator: Laura Garde 16.00 - 18.00 AMPHITHEATER MEETING WITH FAMILIES AND PROFESSIONALS PRIMORDIAL DWARFISM. 17.05 - 18.00 FREQUENT SURGERIES IN ADEE. Borja Delgado Juan Miguel López Palomo Presentation and Moderator: Josep María de Bergoa 18.00 - 19.00 CONSULTAS MÉDICAS |
16.00 - 17.00 THE ROLE OF THE PHYSIOTHERAPIST IN HOLISTIC DEVELOPMENT: WE ALL PLAY, WE ALL PROGRESS. 0-8 years 16.00 - 17.00 PAINTING: PORTRAIT, WE DRAW OURSELVES (EXHIBITION OF WORKS) Raquel Canellada 1 - 100 years 16.00 - 18.00 Amphitheater MEETING OF FAMILIES AND PROFESSIONALS ON THE APPROACH TO PRIMORDIAL DWARFISM. 16.00 - 18.00 Amphitheater MEETING WITH FAMILIES AND PROFESSIONALS PRIMORDIAL DWARFISM. 16.00 - 16.30 WE KNOW PERSONAL EXPERIENCE...: YOUNG INTERNATIONAL SWIMMER Catalina Sagastizabal 16.30 - 18.30 ADAPTED SWIMMING. Spanish Federation for Sports for People with Physical Disabilities. Facilities of the Royal Covadonga Culture Group. It is necessary to know how to swim. 8 - 16 years 18.00 - 19.00 NUTRITION IN CHILDHOOD. 18.00 - 19.00 HOW TO FACE MY FEARS, MOTHERS AND FATHERS OF CHILDREN AGES 12 TO 18. |
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22.00 hrs CONCERT-DANCE, "25 Years EMBRACING THE FUTURE" Group Los Testigos Acapulco Room, Gijón Casino |
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PRESENTATIONS |
WORKSHOPS |
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10.00 - 11.00 MULTIDISCIPLINARY APPROACH TO SKELETAL DYSPLASIAS. Presentation: Stuart Mackenzie Begoña Bascarán Jesús Gonzalo Rato Moderator: Belén Ojeda 10.00 - 11.00 MEETING OF PROFESSIONALS AND FAMILIES AFFECTED BY TYPE II COLLAGENOPATHIES (COL2A1) Moderator: Josep María de Bergoa 11.05 - 11.35 GENETICS, A GUIDE THROUGHOUT LIFE. Presentation: Karen Heath (Las ERN BOND como herramienta hacia un buen diagnóstico) Carlos Bacino Moderator: Karen Heath
11.00 - 13.00 AMPHITHEATER EUROPEAN SKELETAL DYSPLASIA ALLIANCE. MEETING OF THE MEMBERS OF THE EUROPEAN SKELETAL DYSPLASIAS ALLIANCE. Presentation: ERN BOND / Fundación ONCE Susana Noval Virginia Carcedo11.45 - 12.30 VOXZOGO, "PATIENTS ASK, DOCTORS ANSWER" Presentation: Genevieve Baujat Carlos Bacino Moderator: Belén Pimentel 12.40 - 14.25 PHARMACEUTICALS, UPDATES AND NEW TREATMENTS. Biomarin TYRA Presentation and Moderator: Guillermo de la Cueva |
MULTISPORT All day long. Asociación Cosa Nuesa.
10.00 - 11.00 TALKING ABOUT US. 11.00 - 12.00 REHABILITATION OF ASDD. UPPER AND LOWER LIMBS. Karen Turner11.45 - 12.30 POST-SURGICAL CARE. Ma.José Sosa Sandoval Raquel Palacios Venero 11.45 - 12.30 GRANDPARENTS,"SELFLESS LOVE" Carmen Alonso |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35-15.55 LUNCH BREAK |
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16.00 - 17.00 EQUAL OPPORTUNITIES IN SCHOOL. Susana Noval Ana Rivas Ainhoa Yoldi Pilar Dominguez Marian Losada Ruiz Moderator: Carmen Alonso 17.05 - 17.45 "WELCOME TO THE ADULT WORLD" Our young adults speak out 18.00 - 18.55 "WE LEARN FROM YOUNG PEOPLE" |
16.00 - 17.00 MINDFULNESS FOR EVERYONE. + 18 years Fidel Páramo 16.00 - 16.30 SPORT AS A TOOL FOR LIFE. Álvaro Jiménez Sergi Párraga 16.30 - 18.30 BADMINTON Facilities of the Royal Covadonga Culture Group. 7 a 20 years 17.00 - 18.00 REFLEXOLOGY FOR BABIES. Carmen Paja |
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19.00 BIOMARIN SCHOLARSHIP AWARD Submit the best selfie Category: 6-9 years 10-12 years 12-16 years 16- 19 years + 20 years |
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20.00 CLOSING Institutional representatives Representatives of the ONCE Foundation ALPE Representatives |
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21.00 ESPICHA Llagar Bernueces |
A COFFEE WITH...
A COFFEE WITH... DR. KLANE WHITE. / "We talk about the back at ADEE"
A COFFEE WITH... TYRA. / Pharmaceutical.
A COFFEE WITH... DR. MICHAEL BOBER. / Expert geneticist specializing in skeletal dysplasia.
A COFFEE WITH... DR. GUILLERMO IBASETA. / Maxillofacial Expert at ADEE.
A COFFEE WITH… DR. MILLER. / Paley Institute.
A COFFEE WITH… DR. CAMPBELL. / Neurosurgeon.
A COFFEE WITH… DRA. MARY THEROUX. / Anesthesia Expert.
A COFFEE WITH… DR. RAVI SAVARIRAYAN. / Expert in clinical studies.
A COFFEE WITH… DR. LEIVA. / Elongation Expert.
A COFFEE WITH… DR. LOZANO. / Expert in Otorhinolaryngology.
A COFFEE WITH… DR. PALOMO. / Traumatologist expert in dysplasias.
A COFFEE WITH… DR. BERGUA. / Traumatologist expert in dysplasias.
A COFFEE WITH… DR. SOCORRO MARTÍNEZ. / Rehabilitation and Rheumatology. / He will provide clinical advice on requests for disability certificates, reduced mobility, work-related incapacity, and dependency law. (Every day, morning and afternoon)
*REPRESENTATIVES FROM 25 COUNTRIES
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