Palacio de Congresos
Recinto ferial Luis Adaro-FIDMA
Paseo Dr. Fleming, 481, 33203 Gijón
SCIENTIFIC COMMITTEE
Ana María Aranda Iriarte
Guillermo de la Cueva Méndez
Pilar Cagiao Vila
Juan Carlos Rial Basalo
Liliana Santamarina Rabanal
Estrella Fernández Alba
Alejandra Sánchez Yánquez
FRIDAY, OCTOBER 10TH, 2025
10.00 - 13.00
MEETING OF THE SCIENTIFIC COMMITTEE OF THE ALPE FOUNDATION.
10.00 - 13.00
DISCUSSION TABLES.
Clinical management.
Surgery.
Research and new advances.
15.00 - 16.00
REGISTRATIONS
15.45 - 16.00
WELCOME AND PRESENTATION OF THE CONFERENCE.
WORKSHOPS
16.00 - 19.00
SPORTS FOR EVERYONE. PRACTICE OF DIFFERENT SPORTS DISCIPLINES.
Cosa Nuesa Asociación
16.00 - 17.00
RESPIRATORY PHYSIOTHERAPY WORKSHOP FOR 0-6 YEARS.
16.00 - 17.00
POSTURAL EDUCATION IN EVERYDAY LIFE. PHYSIOTHERAPY FOR ADULTS.
Cristina Caño
17.00 - 18.00
SPEECH THERAPY IN THE EDUCATIONAL STAGE.
17.00 - 18.00
MEETING WITH OUR YOUTH.
If You're Between 13 And 17 Years Old… ¡Join Us! We Want To Hear From You.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 0 to 6.
18.00 - 19.00
HOW TO FACE MY FEARS?
Parents of children ages 6 to 12
Marian Losada Ruiz
16.00 - 19.00
MEDICAL EVALUATIONS BY SPECIALISTS.SATURDAY, OCTOBER 11TH 2025
8.00 - 9.00 REGISTRATIONS |
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9.00 OPENING Don Adrián Barbón, Presidente del Principado de Asturias. Por confirmar, Ministerio de Derechos Sociales, Consumo Y agenda. Por confirmar, Ayuntamientos de Gijón. Representante de la Fundación ALPE Acondroplasia. |
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9.45 - 10.15 HUMAN RIGHTS Luis Cayo, Presidente del CERMI |
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PRESENTATIONS |
WORKSHOPS |
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10.25 - 11.10 ADVANCES AND ACTIONS TO ADDRESS NEW CHALLENGES: "THE LIFESPAN IMPACT OF ACHONDROPLASIA" "REVIEW OF APPROVED AND DEVELOPING THERAPIES" "UPDATE ON SKELETAL DYSPLASIAS" Hoover- Fong |
MULTISPORT All day long. Asociación Cosa Nuesa. 10.15 - 11.00 WE COMMUNICATE WITH THE BODY. 1-100 years Paula Páramo 10.15 - 11.00 PERCUSSION MUSIC FOR EVERYONE. Jesús Contreras Gila 10.15 - 11.00 SEXUALITY, WE SPEAK CLEARLY. Ana Isabel Fernández Franco |
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11.10 - 11.25 COFFEE BREAK |
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11.30 - 12.30 ROUND TABLE. NEUROSURGERY, FREQUENTLY ASKED QUESTIONS. Presentation: Jeffrey W.Campbell José Hinojosa Mena Juan Carlos Rial Basalo Moderator: Virginia Fano 11.00 - 13.00 Anfiteatro INTERNATIONAL SUMMIT OF PATIENT ORGANIZATIONS. "Reality Analysis / New Paradigms of Skeletal Dysplasias / Common Challenges / New Steps" Representatives from 36 countries
12.35 - 12.55 NEW HORIZONS IN RESEARCH ON SKELETAL DYSPLASIAS. Moderator: Guillermo de la Cueva 13.00 - 14.00 ROUND TABLE. ENDOCRINOLOGY: MONITORING OF PATIENTS WITH AND WITHOUT TREATMENT. Presentation: Virginia Fano Isolina Riaño Galán Ana Coral Barreda Isabel Leiva Purificación Klaus Mohnike Moderator: Virginia Fano |
11.10 - 12.00 TO DANCE “SEVILLANAS” Lola Angulo 11.10 - 12.00 ATHLETICS Athila Group 6 a 18 years 12.15 NUTRITION EDUCATION AS PREVENTION. Laura Garde + 16 years 12.45 - 13.45 DRESS YOUR ESSENCE: FASHION AND STYLING. Elena Pereda y Veronica Alba Sánchez 12.45 - 13.45 REFLEXOLOGY FOR ADULTS. Carmen Paja |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35 - 15.55 LUNCH BREAK |
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16.00 - 17.00 STRETCHING, "SURGERY AND REHABILITATION" Presentation: I. Ginebreda Miller Moderator: Susana Noval 16.00 - 18.00 Amphitheater MEETING WITH FAMILIES AND PROFESSIONALS PRIMORDIAL DWARFISM. Andrew Jackson Ricardo A.Hanel
17.05 - 17.45 EQUAL OPPORTUNITIES IN SCHOOL. Carmen Alonso Mar Garriga Merche Marian Losada Ruiz Moderator: Susana Noval |
16.00 - 17.00 THE ROLE OF THE PHYSIOTHERAPIST IN HOLISTIC DEVELOPMENT: WE ALL PLAY, WE ALL PROGRESS. Cristina Caño 0-8 years 16.00 - 17.00 PAINTING: SELF-PORTRAIT, WE DRAW OURSELVES (EXHIBITION OF WORKS) Raquel Canellada 1 - 100 years 16.00 - 18.00 Amphitheater MEETING OF FAMILIES AND PROFESSIONALS ON THE APPROACH TO PRIMORDIAL DWARFISM. 16.30 - 18.30 ADAPTED SWIMMING. Spanish Swimming Federation. Facilities of the Royal Covadonga Culture Group. It is necessary to know how to swim. 8 - 16 years 18.00 - 19.00 NUTRITION IN CHILDHOOD. Laura Garde 18.00 - 19.00 HOW TO FACE MY FEARS, MOTHERS AND FATHERS OF CHILDREN AGES 12 TO 18. Marian Losada |
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22.00 hrs CONCERT-DANCE, "25 Years EMBRACING THE FUTURE" Group Los Testigos Acapulco Room, Gijón Casino |
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PRESENTATIONS |
WORKSHOPS |
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10.00 - 11.00 MULTIDISCIPLINARY APPROACH TO ACHONDROPLASIA. Presentation: William Mackenzie José Hinojosa Isabel Leiva Jesús Rato Moderator: Belén Ojeda 11.05 - 11.35 GENETICS, A GUIDE THROUGHOUT LIFE. Presentation: Karen Heath Valerie Cornier Daire Carlos Bacino Moderator: Karen Heath
11.00 - 13.00 Anfiteatro EUROPEAN SKELETAL DYSPLASIA ALLIANCE.
11.45 - 12.30 VOXZOGO, "PATIENTS ASK, DOCTORS ANSWER" Presentation: Genevieve Baujat Klaus M. Melita Bacino Ana Isabel Moderator: Belén Pimentel 12.40 - 13.40 "WELCOME TO THE ADULT WORLD" Our adults speak |
MULTISPORT All day long. Asociación Cosa Nuesa.
10.00 - 11.00 TALKING ABOUT US. Cristina Villar Álvaro Illobre 11.00 - 12.00 REHABILITATION OF ASDD. UPPER AND LOWER LIMBS. 11.45 - 12.30 POST-SURGICAL CARE. Ma.José Sosa Sandoval Raquel Palacios Venero 11.45 - 12.30 GRANDPARENTS,"SELFLESS LOVE" Carmen Alonso |
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14.00 CHILDREN'S LUNCH BREAK |
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14.35-15.55 LUNCH BREAK |
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16.00 - 17.00 PHARMACEUTICALS, UPDATES AND NEW TREATMENTS. Biomarin TYRA Presentation and Moderator: Guillermo de la Cueva 17.05 - 18.00 FREQUENT SURGERIES IN ADEE. Borja Delgado Juan Miguel López Palomo Presentation and Moderator: Josep María de Bergoa 18.00 - 18.55 "WE LEARN FROM YOUNG PEOPLE" |
16.00 - 17.00 MINDFULNESS FOR EVERYONE. + 18 years Fidel Páramo 16.30 - 18.30 BADMINTON Facilities of the Royal Covadonga Culture Group. 7 a 20 years 17.00 - 18.00 REFLEXOLOGY FOR BABIES. Carmen Paja |
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19.00 BIOMARIN SCHOLARSHIP AWARD Submit the best selfie Category 6-9 years 10-12 years 12-16 years 16- 19 years + 20 years |
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20.00 CLOSING Institutional representatives ALPE Representatives |
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21.00 ESPICHA Llagar Bernueces |
A COFFEE WITH...
A COFFEE WITH... DR. KLANE WHITE. / "We talk about the back at ADEE"
A COFFEE WITH... TYRA. / Pharmaceutical.
A COFFEE WITH... QED. / Pharmaceutical.
A COFFEE WITH... DR. GUILLERMO IBASETA. / Maxillofacial Expert at ADEE.
A COFFEE WITH… DR. MILLER. / Paley Institute.
A COFFEE WITH… DR. CAMPBELL. / Neurosurgeon.
A COFFEE WITH… DRA. MARY THEROUX. / Anesthesia Expert.
A COFFEE WITH… DR. RAVI SAVARIRAYAN. / Expert in clinical studies.
A COFFEE WITH… DR. LEIVA. / Elongation Expert.
A COFFEE WITH… DR. LOZANO. / Expert in Otorhinolaryngology.
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